Published: 20th June 2012
A MAN so badly ravaged by tumours he became known as "bubble man" is hoping there might be a cure for his condition — after meeting a top skin doctor.
Chandra Wisnu suffers from a mystery skin disease which left him with growths all over his face and body.
The dad of four, from Indonesia, rarely leaves his house and when he did he was forced to cover his face with a balaclava for fear of frightening, or being ridiculed, by others.
Chandra, 57, said the lesions began to develop on his face when he was just 19 years old.
By the time he was 24 they had spread to his back and by age 32 they almost completely covered his body.
During the early stages of the disease, Chandra’s parents took him to see a number of doctors and dermatologists who were baffled by the severity of his condition.
He said: “There was no special treatment for my disease, I was just told to see one dermatologist after another because they did not know how to treat me.
“After this my dad did not believe there was any reason to take me to hospital anymore and I never saw a doctor again.
“People have never mocked or ridiculed me directly, but they do stare at me and avoid me, most people act very strange around me.
“It makes me feel very insecure and angry when people treat me differently.
“People are afraid, they are frightened of my horrible face and worried they might catch the disease."
With doctors baffled by his unusual condition Chandra gave up hope and tried to live a normal life in spite of his condition.
But when his eldest son Martin, 32, and daughter, Lis Candra, 26, began showing signs of the condition, Chandra went public with his story in a bid to find a treatment and prevent his children from suffering his same fate.
After hearing of his plight, Dr Anthony Gapsari a leading skin specialist from the US, came forward in a bid to help diagnose Chandra’s unusual condition.
And Chandra has been given fresh hope that he can now be rid of the tumours.
culled The Sun
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